Tuesday 12 March 2013

Congenital Cataract Survival Kit

1. Cavilon


This cream was recommended by M's optometrist.  M had been repeatedly ripping off her patches and this was leaving her skin red and bleeding.  We had been putting Calamine around her eye before we put her patches on but it wasn't enough of a barrier between the patch adhesive and her skin, especially when she was ripping her patches off.  Cavilon is a barrier cream.  We put it around M's eye, where the patch adhesive will be touching, and wait a few minutes before putting on the patch.  The cream acts almost as a second skin, so when you take the patch of her face (or when she rips the patch off her face...) the patch is being ripped off the Cavilon rather than right off her skin.  The redness, bleeding, and open skin parts have almost been eliminated with the use of this cream.

I ordered this cream from well.ca, however I'm sure it must be available at drug stores.

2.  Fun Patches


Fun patches helped reduce a lot of questions from people when I would take M out.  The brown generic patches seemed so medical and people were always thinking that she hurt herself - like it was more of a bandaid than a patch.  The fun designs on patches make it more of a fashion statement, more of a permanent part of her life, rather than a temporary thing or accident.  Plus, the patches are fun, and eventually I'm sure M will enjoy picking her patch for the day!

myipatches.com

3.  Sunglasses


I ordered M a pair of these Julbo sunglasses.  I tried ordering these sunglasses online but couldn't find a place that ships from within Canada.  Luckily my optometrist's office carries them and can order them into his office.  I hadn't realized this until I happened to see them in a case at a visit.  When they removed M's cataract, that means that they removed the lens of her eye.  This means that she has no ability to focus images on her own because that lens is gone, and that there is no light filtering happening in her eye, making her world very bright and her eye more sensitive to the light.  These sunglasses caught my eye when I was doing research online for a few different reasons: full coverage of frame and lens to reduce light getting in, flexible and no-hinge frames, wrap around and back elastic strap, and protection from UVA, UVB, and UVC rays.  An added bonus to support my decision on ordering M these glasses, was her optometrist had just ordered a pair for his son who is younger than M.  I got M the Looping III which is supposed to be a size for 2-4 year old.  She tried this size on at the optometrist's office and it seemed to fit her well even though she's 1 years old.

julbousa.com

4.  Contact Case and Contact Solution


Never leave the house without a empty contact case and travel solution!  Contacts were falling out of M's eye all the time at the start, and especially if they are custom lens, you do not want to lose them when you are out.  Having a case and solution at least gives you a fighting chance at saving the contact should it fall out.  Now M has a custom contact that fits really well, and it hasn't fallen out in several weeks, so this isn't as big of a concern right now.  However, at the start, her contact was falling out several times a day, and we definitely didn't go anywhere without the case and solution.

5.  Moisturizing Eye Drops


A lot of times M's contact, again especially at the beginning when trying to get a contact that fit properly, would get wrinkly and dry.  The drier the contact gets the more likely it is to fall out.  We bought some moisturizer drops recommended by her optometrist, and again carry these everywhere we go just in case her contact needs some extra liquid!

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